Resources

There are many useful sites that can offer a tremendous amount of help to parents and caregivers. The National Down Syndrome Society is a national organization that promotes a better understanding of Down Syndrome. They also sponsor the "Buddy Walks" to raise money and promote Down syndrome awareness. In addition they sponsor educational and scientific research and provide online publications. They can be reached at National Down Syndrome Society.

An excellent and well organized site devoted to educational issues for people with Down syndrome is Down Syndrome Education International. There is a lot of information on topics such as memory, reading, cognitive development and communication. Research findings of Sue Buckley are also available, as well as numerous publications. Well worth checking out at Down Syndrome Education International

The Arc is one of the best known national organizations that advocates for people with developmental disabilities, including Down syndrome. It is well worth connecting with your local branch of the Arc, for programs and help. It is a great networking resource to connect you with other families in your area. Contact them at The Arc

The National Dissemination Center for Children with Disabilities (NICHCY) contains a wealth of information on laws, research, resources, news and blog. Information for children with disabilities is grouped by age, infant, toddler, children and youth. Also includes IDEA and No Child Left Behind. Much of the information can be downloaded free from the web site, and is available in English and Spanish. Contact them at NICHCY.

Plenty of excellent information is available from TASH. TASH is an organization that advocates for "equity, quality and social justice for people with disabilities." They hold an annual conference and can be reached at TASH.

The National Easter Seal Society has many local chapters that offer numerous valuable programs for people with disabilities. Services include early intervention, child and adult services, employment training and assistive technology. Check them out at National Easter Seal Society.

The Office of Special Education Programs is a government web site that offers plenty of information about laws and regulations concerning special education. You can download fact sheets and access publications from them at OSEP.

Families are often looking for a wide variety of information in one site, a great site to check out that has a tremendous number of links to valuable resources is disability info.

A wonderful site full of great information on a variety of topics is the Einstein syndrome site. The greatest feature of this site is its incredibly up beat and optimistic attitude. It shows how much individuals with Down syndrome are achieving and what we can continue to expect. It should be considered a must visit site for every parent. Another excellent feature of this site is that it monitors much of the cutting edge research and lets you see what has been happening in many different fields. I am sure you will not be disappointed by the Einstein Syndrome.

The Down Syndrome Research group offers parents a wealth of information on much of the latest research and findings. It is well worth subscribing to the newsletter. Much of the work done by this group is on a national level and integrates finding from different sources. They keep you updated on much of the new and important health and educational studies that can have significant impact for the Down syndrome community. To read their latest spring newsletter and subscribe to coming issues go to DSRTF News.